Life
Family’s changing faces are a medical mystery and marvel
There are only 25 people on the planet with this ultra-rare condition.
Michael Dabu
05.09.24

In the heart of Indonesia, the Surya family’s life is uniquely remarkable.

They are part of an extremely small group affected by a rare syndrome.

Their condition, affecting only 25 people globally, has drastically altered their facial features, but this has not dimmed their vibrant spirits or ambitions.

Despite their distinct appearance, they’ve harnessed their uniqueness, turning it into a source of both inspiration and livelihood through the platform of TikTok.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

Among the Suryas, one family member has become particularly notable.

This individual has mastered the art of social media influence.

Through their charisma and engaging content on TikTok, they earn up to $500 daily from live streams alone.

Their success is proof of how personal charm and talent can eclipse physical appearances.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

Creating TikTok videos is a full family endeavor for the Suryas.

They gather around a ring light, transforming their distinct features into art.

Each family member, young and old, contributes by planning, performing, and interacting with their growing fan base during these sessions.

Their videos are visually engaging, highlighting their unique features in a captivating play of shadows and light.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

Despite their success, the Suryas’ journey has been riddled with societal challenges.

Their local fame has not shielded them from discrimination.

In their community, they face bullying due to their appearance.

However, their prominent social media presence has begun to shift perceptions, offering a platform to advocate for resilience and acceptance.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

The family dynamics add another layer of interest, particularly involving the four sisters central to their social media efforts.

Two of the sisters are unaffected by the syndrome.

Yet, this difference does not hinder their collaboration.

Instead, it enriches their content, showcasing a beautiful blend of diversity and unity, and highlighting how strong family bonds can overcome adversity.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

Their story extends beyond physical differences, embracing themes of resilience and acceptance.

They openly discuss their condition and societal reactions.

Through their videos and live streams, they address these topics with humor and sincerity, creating content that resonates deeply with their audience and encourages a broader dialogue on acceptance.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

A significant aspect of their life and content is their spiritual beliefs, often highlighted by a poignant quote from the Quran.

“Perhaps you dislike something which is good for you.” (Al-Baqarah 2:216)

This verse not only reflects their personal journey but also offers a universal message about the hidden blessings in life’s challenges, inspiring their viewers to seek positivity in their own lives.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

The approach the Surya family takes to life and social media offers a vibrant lesson on maximizing life’s circumstances.

They use their unique situation as a pathway to success.

Their story is not just about providing entertainment; it imparts significant life lessons on overcoming prejudice and utilizing visibility as a powerful tool for change.

YouTube Screenshot - Joe HaTTab
Source:
YouTube Screenshot - Joe HaTTab

Ultimately, the Surya family embodies resilience and acceptance in a world that often prizes conformity.

Their story celebrates the strength found in our differences.

As they continue to share their experiences and connect with their audience, they inspire others to embrace their individuality and convert adversities into opportunities, proving that what sets us apart can indeed be our greatest asset.

Watch the full story below.

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